GO PURPLE: 18-Year-Old Lupus Warrior Tanisha Edwards Helps Raise Awareness For Those Fighting Worldwide
A) I was first diagnosed with Lupus in July of 2016.
2) What were your feelings when you first got your diagnosis?
A) Hearing this news at first I didn’t have a reaction. My mom has been suffering from lupus since 2008 and seeing the different procedures and complications this disease has caused her sort of had me frightened. I was really confused and questioning God’s plan for what he really had in store for me. Before I was diagnosed I wanted to join the Air Force, due to my disease, it has held me back. So I was really upset when I finally realized how much this chronic illness can ruin my future. I was in a depression stage trying to figure out how is Lupus going to react with me. Knowing that I was only 17 at the moment, I started thinking about death.
3) Does Lupus run in your family?
A) Yes, Lupus runs in my family, my Mother also has SLE.
4) What symptoms do you have because of Lupus?
A) The different symptoms I have from Lupus are weight loss, fatigue, drowsiness, muscle aches, I also have flares which consist of rashing on the face that’s bright red. Sometimes it last a week or two, and it also can burn as well. I have complications with my lungs as well, due to the fact that Lupus tries to destroy the organs of your body.
5) Does Lupus limit your everyday activity? How much?
A) Yes, Lupus majorly limits my everyday activities. I don’t go outside between 10 a.m. and 7 pm. The sun is my number one enemy that causes the Lupus to flare. I can’t do as much as I use to. Such as house chores. My mom limits what I do to one day, so I have to pick the days I would like to clean the bathroom, kitchen, or my room. A lot of working and moving around causes me to become fatigue.
6) I know that having Lupus is not easy at all, but how has overcoming and fighting the condition helped you grow overall?
A) Overcoming and dealing with my disease helps me grow mentally and also spiritually. Before I was diagnosed I wouldn’t care about the small things in life, but I’ve learned to cherish every moment that God gives me. I’ve become more mature in life because I feel that what I’m facing is not a joke. I think this forced me to become a confident young woman. As well, I’ve become closer to God. Instead of trying to figure out where he went wrong I started to open myself up to him more, allowing him to walk me step by step through this process. God has been my biggest support and I believe that Jesus has the healing power. Not just health wise, but mentally as well. My favorite bible verses has become “God is within her, she will not fall; God will help her at break of day.” Psalm 46:5 NIV
7) If you could give advice to anyone who currently has Lupus or who has not yet been diagnosed what would it be?
E'Vonne Gipson60 Posts
Follow E'Vonne: Instagram: @forever_evonne Twitter: @EVonneGipson SC: @byevonnegipson E'Vonne Gipson is an award winning journalist from Missouri City, TX. She is a graduate of Grambling State University where she received a B.A. degree in Mass Communication with a concentration in journalism and public relations. Gipson has written for several publications including Sheen Magazine, HBCU Buzz, The Black Beat, The News-Star, The Ruston Daily Leader, JubileeMag.com, and Houston Style Magazine. She is a former business reporting intern at Abilene Reporter-News in Abilene, TX and a current social media intern for MC Lyte's Hip Hop Sisters Network. She first began her journalism career writing for her school's newspaper "The Gramblinite". In 2016, Gipson worked with the Web Department at Houston television station, KHOU-11 TV where she gained professional photography and social media skills. Gipson is currently a producer at USA Today Network newspaper, The News-Star in Monroe. She is a member of The National Association of Black Journalists (NABJ), Society of Professional Journalists (SPJ), Society of American Business Editors and Writers (SABEW), and Alpha Kappa Alpha Sorority, Inc.